Time to speak up! Access to life saving epinephrine is an important ongoing conversation in our food allergy community. Now, we have the opportunity to share our thoughts on this topic with a national food allergy advocacy organization, Food Allergy Research and Education (FARE). Change begins with passion, hard work and data. I’m thrilled to be able to participate and help find solutions.
SURVEY: Patient Perspective: Access to and Affordability of Epinephrine
From FARE…
This survey, designed to be taken by parents/caregivers of children with food allergies as well as adults with food allergies, is part of our efforts to better understand the food allergy community’s current perspectives on issues related to access and affordability of epinephrine and how these issues affect overall quality of life. This information is critical to our ability to effectively channel resources, and to have the greatest positive impact in identifying sustainable and affordable solutions that provide appropriate access to all in need.
Your estimated 15 minutes of time to take the survey will be appreciated and all your information will be kept confidential as you remain anonymous.
As someone who advocates for laws and policy change, I thank you for taking your time. Please share this survey with parents/caregivers of kids with food allergies and adults with food allergies too!
Change begins with us!
One of the hardest things I find about managing both life threatening food allergies and asthma is talking to others. I hate to be the one that might be perceived as demanding, pushing or for asking too much. What I now know, fourteen years later, is that honest, clear information presented with kindness works!..