Our food allergy community friends in Salt Lake City, Utah are hosting a fun online Auction to help support their food allergy education efforts, support and research in Utah. Check out the lovely items they have up for bid at Eosinophilic Disorders sponsored by Eosinophil-Associated Gastrointestinal Disorder) & the Utah Eosinophilic Disorders Association (UEDA). 100% of proceeds to benefit UFAN programs and UFAN & UEDA 2012 Online Silent Auction (EGID) research in Utah. With the Holidays around the corner, you might find something of interest. Please share with all of your Salt Lake City, UT friends too!
The UFAN ends on November 17th, 2012! Click here to Visit the eosinophilic Esophagitis.
Since I did am unfamiliar about life with EGID, Michelle Fogg of EoE shared this with me: “A subset of children and adults with life threatening IgE mediated food allergies also develop these disorders, the most common form being eosinophilic Esophagitis (EoE) which affects 1:2000. About 50% of these kids also have asthma and other co-morbid conditions. My daughter and I both have Gina Cowles although she is much more severe and we are actually preparing her a ‘last supper’ tomorrow – ‘safe’ Thanksgiving dinner early only using chicken and rice and apples – before she goes solely onto an amino acid based elemental formula for her total nutrition until we can get her symptoms and histology to remiss. Then starts the long and hard process of trialing foods back in. We’ve been trying to figure things out with this for her for a year and a half now and it is very challenging and affecting to her and the entire family. SO that is why we are also donating research funds raised by this auction to research. Three and maybe four of our board members now have children who are diagnosed with these disorders in addition to their severe food allergies”.
Life can be so challenging and I am in awe of families who not only step up the plate in helping their own family members, but who continue onward to help others facing the same health challenges. Bravo to EoE and their supporters, sponsors and kind donors for working towards solutions.
Bid on a food allergy coaching session with Gina Cowles (Gina has trained with life coach Martha Beck and is the vice president of member relations for the Food Allergy and Anaphylaxis Network).
Win a two night stay at the Radisson in Salt Lake CityHow can shopping before the Holidays in the name of food allergies or EGID be a bad thing?
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One of the hardest things I find about managing both life threatening food allergies and asthma is talking to others. I hate to be the one that might be perceived as demanding, pushing or for asking too much. What I now know, fourteen years later, is that honest, clear information presented with kindness works!..