It is a stunning honor to witness this young man’s food allergy light bulb flip on. To be honest, it was more like watching an entire city light up with life, passion and color! On Facebook yesterday, I stumbled upon John Espinosa’s post about his food allergy wake up call. Not only was it a game changing moment, this breath-taking event inspired John to begin truly living with his food allergies, to feel empowered and to basically grab the bull by the horns! With John’s blessing, below are the powerful words that flowed after his revelation…
John Espinosa’s Friday Food Allergy Wake-Up Call….
Friday February 26th 4pm was a wake-up call. A white chocolate chip macadamia nut (… really cashew) cookie landed me square in the hospital. That Friday, I learned to be adamant when it comes to food allergies. Show me an ingredient list. Call out friends that snicker or roll their eyes when I ask the waiter to clarify whether kitchen equipment is scrubbed well between meals. Shut down people who bother me about how my EpiPens® make my pants look clunky.
I AM DONE feeling like an “inconvenience.”
Do you know what inconvenience is?
Inconvenience is getting in an Über from work to “wait it out” at Walgreens because you’re worried about all the drama of an ambulance.
Inconvenience is needing to build up the courage to stab yourself with epinephrine for the first time.
Inconvenience is bawling in the middle of Walgreens in the arms of a pharmacist waiting for the paramedics, thinking you’re going to die.
Inconvenience is listening to your mom break down half way across the country because of how helpless she feels about not being there to see you.
If you’re going to joke, if you’re going to make me feel uncomfortable for being an “inconvenience”… then you and I have vastly different definitions of inconvenience. I’m done pandering to anyone about this. My life should be worth more to you than an awkward moment or two.
The above story was a status I wrote on Facebook the morning after my fit of anaphylaxis. I was so tired of the side eye I was receiving from friends. Tired of the judgment they placed on me because of my life threatening illness. So exhausted from the constant stream on individuals calling me out for “inconveniencing” their lives.
I noticed, in the blur of drama that unfurled at the Walgreens in Bellevue, all the looks of compassion and worry I was receiving from strangers. Strangers who would most likely have given me the same food allergy grief my friends did, had they not seen how bad it gets”.
I simply stopped in my dead in my tracks when I read John’s post. He spelled it out perfectly. His life mattered. I felt his frustration of past choices and behavior to accommodate those around him, I imagined his mother’s pain as the afternoon’s events unfolded, and most of all, I felt John’s passion and need to become empowered explode into action before my eyes.
Not only am I impressed with his passion, but I discovered he is a hard-core foodie too! You may know that I have a degree in Hotel and Restaurant management and I even studied in Europe, so I love my food. I almost cried when John shared that he was formerly a staged at the famed Aviary Cocktail and small bites Bar in Chicago. Which is owned by the award-winning,restaurateur Grant Achatz, who owns Alinea, a Michelin Guide three-star establishment (note: there are only 12 total three star restaurants in the entire US)!
“This dichotomy of compassion is what inspired me to start the Facebook page Food Allergy Empowerment. I’ve heard from so many fellow food allergy sufferers about the times they take a Benadryl and “wait it out” like I tried to. They don’t want to make a big deal about something that is a ginormous problem. I want to create a space that gave allergy sufferers the courage to act in their best interests despite the judgment of those around them. I want to create a space that gave people who didn’t suffer from food allergies an uncensored glimpse into the struggles they’ve written off for so long. Food Allergy Empowerment is a place for food allergy sufferers and their allies to share stories about the problems they’ve had to overcome with anaphylaxis. The community is just getting started. I hope you’ll join in; empowering those who are peer pressured towards death to fight for their lives,” explained John.
Join me in cheering on John’s new adventure into finding his food allergy voice?
Check out John’s new Facebook Group: Food Allergy Power and his new website: Food Allergy Empowerment
Disclaimer: I am simply a mother who hopes that her children will be inspired by John’s story and passion for empowerment. I was not paid to write about this situation–it is an honor to witness a young person discover their value and ignite their passion for life!
John shared a little bit about himself, “Hello! My name is John Espinosa. I’ve been a severe food allergy sufferer since birth. Cashews, pistachios, and lychee are the foods out to get me. Oddly enough I never discovered I had food allergies until I was 13. My grandpa had me try a cashew. Needless to say I’ve never tried anything new since. 😉
I’m currently a Seattle resident working at Microsoft as a Program Manager and a recent graduate of The University of Illinois. I love to bake, code, work out, and eat junk food with friends. Please reach out on Food Allergy Empowerment. I love to share tips and stories with people that deal with the same problems I do. I hope to become an advocate for the food allergy community so others won’t have to go through the hardships I have”.
John Espinosa
Thank you for sharing my story. I really appreciate your kind words <3 Hopefully some good comes out of my terrible Friday. Food Allergy Empowerment! =]
Emily
I really felt connected to your story. Not for me, but my 11 year old son. He is severely allergic to dairy. Lots of ups and downs. But as he gets older, there are a ton of new challenges he isn’t even aware of yet. Going out on a date, a kiss, etc. Thank you for sharing your experience so others can learn. I hope you have a lot of success in life. You certainly deserve it.
Gina Mennett Lee
I love to see these powerful stories! Thanks for sharing John’s and for cheering him on, I’ll be sure to check out his Facebook page and website.
Caroline Moassessi
I am just so impressed by how well he articulated his epiphany! I think John will be making a big difference in our world.
John Espinosa
Thank you both for taking the time to read it =] the support I’ve received is incredible.
Carol
Having 2 kids with different anaphylactic food allergies makes ordering in a restaurant quite a process for us. Hence, we don’t eat out as much as we would normally. Our friends that have been to dinner with us have seen the process. I do feel bad when I forget to ask a particular question and the server has to make an extra trip (such as asking about the bread or chips or sides). I’m human. Maybe I need a laminated cheat sheet with all the questions. But I have to be extremely careful. Since my 5 yr old had an instance where she had to go to the hospital even after I asked all of the right questions, it makes this even more daunting. I try to check the online allergy menu in advance and bring it with me but most restaurants don’t have one. I try to be very courteous and with 2 little monkeys all jacked up bc they actually get to eat out I know makes our table a little hectic. I always leave extra tip. I try to ask as many questions as I can remember upfront, but the life of my child will always outweigh the inconvenience of the server. Thank you, John Espinosa, for sharing your experience and raising allergy awareness.
John Espinosa
I’m so sorry about your hospital visit. It’s heartbreaking to find yourself in that situation when you don’t know what you could have done differently. Keep confident and empowered. It’s all any of us can do.
Caroline Moassessi
Hi Carol, My almost teenage daughter forgot to mention the allergy upon ordering just last night. It happens. Thankfully, she realized it and grabbed the waiter and eat there often and spoke to the manager upon arrival, but it is our policy to always mention it again. Now that the kids are older and have outgrown some allergies, we eat out more often. You’re a good mom, do good things!